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		<title>Learning disability - UnHerd</title>
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		<description>think again</description>
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					<title>When Britain turned its back on child abuse</title>
					<link>https://unherd.com/2021/03/how-britain-turned-its-back-on-child-abuse/?edition=us</link>
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						<![CDATA[katharine quarmby]]>
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							<![CDATA[Are zero-tolerance behaviour policies to blame? (Photo by Peter Summers/Getty Images)]]>
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						<unherd:twitter_bio>
							<![CDATA[<p><strong>Katharine Quarmby </strong>is a journalist and author.</p>
]]>
						</unherd:twitter_bio>
						<unherd:twitter_handle>KatharineQ</unherd:twitter_handle>
															<unherd:author_bio>
						<![CDATA[is a journalist and author.]]>
					</unherd:author_bio>
										<pubDate>Tue, 16 Mar 2021 00:01:26 +0000</pubDate>
					<updated>Tue, 16 Mar 2021 00:01:26 +0000</updated>
							<category><![CDATA[Uncategorized]]></category>
		<category><![CDATA[Child abuse]]></category>
		<category><![CDATA[Children]]></category>
		<category><![CDATA[Disability]]></category>
		<category><![CDATA[Education]]></category>
		<category><![CDATA[Learning disability]]></category>
		<category><![CDATA[school]]></category>
		<category><![CDATA[Scotland]]></category>
		<category><![CDATA[Wales]]></category>
					<guid isPermaLink="false">https://old.unherd.com/?p=84894</guid>
																												<description>
								<![CDATA[Disabled children are being scarred for life by disturbing practices in schools]]>
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								<![CDATA[<p>When the actor Sally Phillips arrived to pick up her teenage son Olly from school, she was confronted with a scene so shocking it would make any mother question whether her child could be safe in the classroom.</p>
<p>“He was pinned to the grass face down, with his arms behind his back, by a young male teacher wearing blue latex gloves while a small group of other staff looked on,” she tells me. “Olly later said that he’d been carried through the school by four staff, one to each limb and thrown.”</p>
<p>Olly, who has Down&#8217;s syndrome, was fortunate enough to be able to move to a school more sensitive to his needs. But his disturbing treatment remains a frequent occurrence in educational institutions across the United Kingdom — and it is overwhelmingly disabled children who are being left both mentally and physically scarred by it.</p>
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<p>Previously, the abuse of children in schools was thought to be a disturbing product of a bygone era; something that took place in Victorian Britain rather than the 21<sup>st</sup> century. That is, of course, partly due to the shameful lack of media interest in this area. Indeed, it’s rather telling that in the past year, the only time it has been significantly covered in the national press was last month, when Paris Hilton spoke out about her own experience of restraint and seclusion in a Utah boarding school for so-called “troubled teens”. She tells me: “That small room, covered in scratch marks and smeared blood, with no bathroom, is one of the most vivid and traumatising memories I’ve ever experienced in my entire life.&#8221;</p>
<p>It was a grim, honest account of abuse in school — and one shared by countless children here in Britain. Restraint forms part of a sanctioned group of so-called “restrictive practices” used in education, health and social care settings, as well as, unsurprisingly, in prisons. In the UK, these practices are regulated with a duty “to record and report” in all settings except education. Methods include physical restraint (with a number of different holds taught), mechanical restraint (such as being tied to a chair), chemical restraint (using drugs) and the use of seclusion, with children being sent to rooms or even tents and confined within them.</p>
<p>Add to this the emerging practice of imposing “blanket restrictions”, whereby children are not allowed to walk, run or play with their peers, or must visit the toilet at a set time (which is often not appropriate for some disabled children), and it’s no wonder that so many parents of disabled children are terrified for their well-being.</p>
<div class="ref-ar"><a href="https://unherd.com/2019/10/how-my-daughter-disrupted-my-politics/?edition=us&#038;ref=refinnar" class="text-decoration-none border-0"><a href="https://unherd.com/2019/10/how-my-daughter-disrupted-my-politics/?edition=us&#038;ref=refinnar" class="text-decoration-none border-0"><img decoding="async" src="https://unherd.com/wp-content/uploads/2019/10/IMG_3173-e1571085811438.jpg?w=300" /></a><div class="content"><a href="https://unherd.com/2019/10/how-my-daughter-disrupted-my-politics/?edition=us&#038;ref=refinnar" class="text-decoration-none border-0"><span class="meta">Suggested reading</span></a><a href="https://unherd.com/2019/10/how-my-daughter-disrupted-my-politics/?edition=us&#038;ref=refinnar" class="text-decoration-none border-0"><h5>How my daughter disrupted my politics</h5></a><p class="author"><a href="https://unherd.com/2019/10/how-my-daughter-disrupted-my-politics/?edition=us&#038;ref=refinnar" class="text-decoration-none border-0"><span>By</span> Ian Birrell</a></p></div></a></div>
<p>For most parents, the zero-tolerance behaviour policies enforced in so many schools are to blame for this hidden crisis. As one campaigner, Beth Morrison, tells me: “We banned the belt in the eighties; now we are bringing physical punishment back for disabled kids by the back door.”</p>
<p>Beth’s son, Calum, who has epilepsy and support needs, was restrained on a number of occasions at a school in Dundee between 2010 and 2013. On one occasion, after he failed to follow a prescribed route when riding a bike designed for children with disabilities, he was restrained by four people and left with <em>sixty</em> bruises on his body. Dundee City Council say that they have fully engaged with police and prosecutors, and have taken on recommendations from the subsequent report. But Calum’s experience inspired Beth to set up the charity Positive and Active Behaviour Support Scotland (PABSS) in 2017, and has since collected more than 1,200 testimonies from families whose children — the youngest of whom was just aged two — have been restrained or secluded. In one recent case, a child who was held face down in the playground now needs a skin graft.</p>
<p>Yet when Morrison attends school meetings at the request of anxious parents, she says it’s a common refrain for senior teachers to dismiss their concerns by saying: “We have no records, so you have no evidence.” Indeed, a recent survey by the Children’s and Young People’s Commissioner for Scotland revealed that one third of Scotland’s local authorities did not expect schools to keep a record. (The shocking findings have since forced the Scottish government to agree to produce guidance on the use and monitoring of restraint and seclusion.)</p>
<p>The Northern Ireland assembly is also starting to wake up to the trauma and injuries endured by disabled children every day. Last month, Deirdre Shakespeare gave harrowing testimony about the experience of her son, Harry, now nine, to the assembly’s education committee. She tells me that Harry, then aged five, had been happy and placid. But after attending a “special school”, he started to have panic attacks and night terrors, and cowered in fear whenever his parents approached him.</p>
<div class="ref-ar"><a href="https://unherd.com/2020/05/why-doesnt-my-son-matter/?edition=us&#038;ref=refinnar" class="text-decoration-none border-0"><a href="https://unherd.com/2020/05/why-doesnt-my-son-matter/?edition=us&#038;ref=refinnar" class="text-decoration-none border-0"><img decoding="async" src="https://unherd.com/wp-content/uploads/2020/05/IMG_1127.jpg?w=300" /></a><div class="content"><a href="https://unherd.com/2020/05/why-doesnt-my-son-matter/?edition=us&#038;ref=refinnar" class="text-decoration-none border-0"><span class="meta">Suggested reading</span></a><a href="https://unherd.com/2020/05/why-doesnt-my-son-matter/?edition=us&#038;ref=refinnar" class="text-decoration-none border-0"><h5>Why doesn&#039;t my son matter?</h5></a><p class="author"><a href="https://unherd.com/2020/05/why-doesnt-my-son-matter/?edition=us&#038;ref=refinnar" class="text-decoration-none border-0"><span>By</span> Lucy Parr</a></p></div></a></div>
<p>The family later discovered that he had been strapped to a chair for different activities, including learning, feeding and playing, even though he has no mobility issues. Colin McMenamin, from KRW, a leading Irish human rights law practice, said: &#8220;We have issued proceedings on this important matter and are seeking judicial oversight on what remains a very sensitive issue.&#8221;</p>
<p>When I approached Education Authority Northern Ireland for comment, a spokesperson said that the authority does not comment on “matters relating to individual children”<strong>.</strong> It is worth noting, though, that Morrison and Shakespeare told the Assembly that 22 Northern Irish families with disabled children aged between four and eleven had reported similar cases to PABSS, including physical injuries such as scratches, bruising and abrasions from being dragged. Moreover, the Northern Irish children’s commissioner, in a submission to the UN Committee Against Torture, has called for tougher laws, saying that schools should be required to report and record cases and that the law around when restraint can be used needs to be clarified.</p>
<p>The Welsh government is also currently consulting on guidance to better monitor restraint and seclusion across all age groups. In England, however, the Department for Education (DfE) is lagging behind, despite overwhelming evidence of harm in English schools.</p>
<p>In February last year, campaigners and advocates gathered at the House of Lords for the launch of the Reducing Restrictive Interventions and Safeguarding Children report. It included the testimony of one family whose child, referred to as Annie, was restrained 158 times in the space of eighteen months. “Many of these restraints spanned considerable time periods and involved multiple staff members,” it said. Annie “started self-harming and making suicidal threats” and “is now having trauma therapy”.</p>
<div class="ref-ar"><a href="https://unherd.com/2019/06/britains-scandalous-disregard-for-disability/?edition=us&#038;ref=refinnar" class="text-decoration-none border-0"><a href="https://unherd.com/2019/06/britains-scandalous-disregard-for-disability/?edition=us&#038;ref=refinnar" class="text-decoration-none border-0"><img decoding="async" src="https://unherd.com/wp-content/uploads/2019/06/GettyImages-1133288992.jpg?w=300" /></a><div class="content"><a href="https://unherd.com/2019/06/britains-scandalous-disregard-for-disability/?edition=us&#038;ref=refinnar" class="text-decoration-none border-0"><span class="meta">Suggested reading</span></a><a href="https://unherd.com/2019/06/britains-scandalous-disregard-for-disability/?edition=us&#038;ref=refinnar" class="text-decoration-none border-0"><h5>Our scandalous disregard for disability</h5></a><p class="author"><a href="https://unherd.com/2019/06/britains-scandalous-disregard-for-disability/?edition=us&#038;ref=refinnar" class="text-decoration-none border-0"><span>By</span> Ian Birrell</a></p></div></a></div>
<p>On the same day, the Equality and Human Rights Commission (EHRC) announced that it would hold an inquiry into the practices in English and Welsh schools, and should report within the next few weeks. Yet campaigners and experts fear that nothing will change in England.</p>
<p>And if history provides a guide, they may well be correct. Even back in 2011, a review of restraint and seclusion in English and Welsh schools by Charlie Taylor, then the government’s behaviour advisor, looked at the recording and reporting of use of force. His conclusion? That schools should <em>not</em> be forced to record such incidents because it would add to “<a href="https://data.parliament.uk/DepositedPapers/Files/DEP2011-1400/DEP2011-1400.pdf">their bureaucratic burden</a>”. Eight years later, the DfE eventually produced non-statutory guidance on the use of the practices for disabled young people — but only in specialist settings. It did not cover mainstream schools and did not require schools to inform parents, many of whom want their disabled child educated alongside their non-disabled peers.</p>
<p>So many are left looking, albeit with a hint of cynicism, to the DfE’s current behaviour tsar, Tom Bennett, who is set to launch a Behaviour Hubs programme, which he says will encourage schools to be “low tolerance” regarding behaviour, rather than zero tolerance. The DfE were approached for comment about parental concerns but did not respond. Bennett, however, has said that restraint is “incredibly rare in mainstream schools” and that the rules about restraint are adequate because it is rare and defends the use of “removal rooms and parking students separately from their classes…a common and useful part of many mainstream schools”.</p>
<p>James Betts, a solicitor at Irwin Mitchell, who acts for families representing a group of children who were restrained across the UK, disagrees. “Our most vulnerable children are being failed on account of the lack of adequate legal safeguards, and the families I act for believe that current restraint practices in the UK leave children with learning disabilities or autism at a very real risk of serious injury or even death,” he says. “Until robust action is taken, the children and families I act for will not rest. They deserve answers, accountability and real change to protect others in the future.”</p>
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					<title>Our scandalous disregard for disability</title>
					<link>https://unherd.com/2019/06/britains-scandalous-disregard-for-disability/?edition=us</link>
											<comments>https://unherd.com/2019/06/britains-scandalous-disregard-for-disability/?edition=us#respond</comments>
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					<dc:creator>
						<![CDATA[Ian Birrell]]>
					</dc:creator>
					<unherd:creator_img>https://unherd.com/wp-content/uploads/2019/09/Birrell.jpg?w=96</unherd:creator_img>
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							<![CDATA[Credit: Getty]]>
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							<![CDATA[<p><strong>Ian Birrell</strong> is an award-winning foreign reporter and columnist. He is also the founder, with Damon Albarn, of Africa Express.</p>
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						</unherd:twitter_bio>
						<unherd:twitter_handle>ianbirrell</unherd:twitter_handle>
															<unherd:author_bio>
						<![CDATA[ is an award-winning foreign reporter and columnist. He is also the founder, with Damon Albarn, of Africa Express.]]>
					</unherd:author_bio>
										<pubDate>Tue, 18 Jun 2019 13:27:36 +0000</pubDate>
					<updated>Fri, 15 Oct 2021 14:13:11 +0000</updated>
							<category><![CDATA[Uncategorized]]></category>
		<category><![CDATA[Connor Sparrowhawk]]></category>
		<category><![CDATA[Downs Syndrome]]></category>
		<category><![CDATA[Inequality]]></category>
		<category><![CDATA[Learning Disabilities Mortality Review (LeDeR)]]></category>
		<category><![CDATA[Learning disability]]></category>
		<category><![CDATA[Riven Britain]]></category>
					<guid isPermaLink="false">http://old.unherd.com/?p=20431</guid>
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								<![CDATA[The inequality we inflict on this minority even includes death]]>
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								<![CDATA[<p><i>Inequality is arguably the most contentious issue of our time, alienating citizens from governments as well as one from another. The public debates place too much emphasis on disparities in income, to the exclusion of equally important forms of inequality. In this week’s series, Riven Britain, our contributors explore <em>some of the other </em>inequalities tearing our society apart.</i></p>
<p>&nbsp;</p>
<p>We should welcome the fact that the issue of inequality has surged up the political agenda, given the lingering injustices around class, colour or gender that confront many people in our society. Yet the most powerless minority, a group offered the fewest opportunities and subjected to the worst abuses, remains excluded even in the debate on diversity and inequality.</p>
<p>People with learning disabilities lose out from birth and are largely shunned by <a href="https://unherd.com/2019/06/why-money-wont-fix-the-poverty-problem/" target="_blank" rel="noopener noreferrer">wider society</a>. All too often these citizens struggle to access basic services, are excluded from schools, placed in poor housing, suffer routine abuse in the streets, and rarely get decent jobs. <a href="https://www.bbc.co.uk/news/uk-northern-ireland-33815626" target="_blank" rel="noopener noreferrer">It is permissible for comedians to mock them and still be given plum BBC shows</a>, while scientists are rushing into a new age of eugenics based on scans and tests to eliminate conditions such as Down’s Syndrome with scarcely a murmur about ethics.</p>
<p>As the father of a daughter with profound learning disabilities, I find this highly depressing. It has inspired my campaign to highlight the scandal that people with autism and learning disabilities are being incarcerated in secure hospital units for years on end by the state, often in hideous conditions behind locked doors, in solitary confinement and sometimes even with families silenced with gagging orders or through intimidation. Incredibly, the inequality inflicted on this exiled minority even includes death.</p>
<div class="ref-ar"><a href="https://unherd.com/2019/01/the-invisibility-of-disability-on-screen/?edition=us&#038;ref=refinnar" class="text-decoration-none border-0"><a href="https://unherd.com/2019/01/the-invisibility-of-disability-on-screen/?edition=us&#038;ref=refinnar" class="text-decoration-none border-0"><img decoding="async" src="https://unherd.com/wp-content/uploads/2019/01/GettyImages-635903112.jpg?w=300" /></a><div class="content"><a href="https://unherd.com/2019/01/the-invisibility-of-disability-on-screen/?edition=us&#038;ref=refinnar" class="text-decoration-none border-0"><span class="meta">Further reading</span></a><a href="https://unherd.com/2019/01/the-invisibility-of-disability-on-screen/?edition=us&#038;ref=refinnar" class="text-decoration-none border-0"><h5>The invisibility of disability on screen</h5></a><p class="author"><a href="https://unherd.com/2019/01/the-invisibility-of-disability-on-screen/?edition=us&#038;ref=refinnar" class="text-decoration-none border-0"><span>By</span> Ian Birrell</a></p></div></a></div>
<p><a href="https://www.mencap.org.uk/press-release/concerns-over-lack-clinical-training-causing-avoidable-learning-disability-deaths" target="_blank" rel="noopener noreferrer">It is estimated that 1,200 people with learning disabilities die avoidable deaths in the national health service each year</a>. That is 100 needless deaths of people like my daughter each month – or more than three every day. Little wonder that women with learning disabilities die 27 years earlier than other British females and men 23 years earlier than the rest of the population. Sometimes this is due to dysfunctional services or unintentional lack of understanding, which is bad enough. But there are also cases of prejudiced professionals participating in a slaughter of innocents.</p>
<p><a href="https://www.pcpld.org/wp-content/uploads/PCPLDconference2018_EmilyHandley.pdf" target="_blank" rel="noopener noreferrer">This shameful situation was confirmed by the Learning Disabilities Mortality Review (LeDeR)</a>, after Sara Ryan, a medical researcher, spoke out following the death of her teenage son Connor Sparrowhawk due to failures by Southern Health Trust. He was left to drown in a bath after suffering an epileptic fit, despite his carers’ full knowledge of his condition. The latest LeDeR report found about one in 12 of fatalities investigated ‘received care that fell so far below expected good practice that it either significantly impacted on their well-being or directly contributed to their death’. Concerns had been raised in more than one in 10 deaths.</p>
<p>Pneumonia, a treatable condition, was often a cause of death. The review found bias continues even after death, with cases significantly less likely to be reported to a coroner. Down’s Syndrome is listed routinely as a reason not to resuscitate, while learning disabilities appear as &#8217;cause of death&#8217; on medical certificates, although it is not a disease that can kill like cancer. This highlights how even some health professionals in hospitals disregard people with learning disabilities, reflecting wider prejudices that corrode our society.</p>
<div class="ref-ar"><a href="https://unherd.com/2018/01/reported-issue-terrifies-politicians-affects-every-household-social-care/?edition=us&#038;ref=refinnar" class="text-decoration-none border-0"><a href="https://unherd.com/2018/01/reported-issue-terrifies-politicians-affects-every-household-social-care/?edition=us&#038;ref=refinnar" class="text-decoration-none border-0"><img decoding="async" src="https://unherd.com/wp-content/uploads/2018/01/IMG_9474.jpg?w=201" /></a><div class="content"><a href="https://unherd.com/2018/01/reported-issue-terrifies-politicians-affects-every-household-social-care/?edition=us&#038;ref=refinnar" class="text-decoration-none border-0"><span class="meta">Further reading</span></a><a href="https://unherd.com/2018/01/reported-issue-terrifies-politicians-affects-every-household-social-care/?edition=us&#038;ref=refinnar" class="text-decoration-none border-0"><h5>Under-reported: The issue that terrifies politicians and affects every household - social care</h5></a><p class="author"><a href="https://unherd.com/2018/01/reported-issue-terrifies-politicians-affects-every-household-social-care/?edition=us&#038;ref=refinnar" class="text-decoration-none border-0"><span>By</span> Julia Unwin</a></p></div></a></div>
<p>Imagine the outcry if another minority was dying due to blinkered attitudes in the sacred NHS. But for bereaved families of the disabled, their misery is compounded by a struggle to have the truth heard. Take the case of <a href="https://en.wikipedia.org/wiki/Hadiza_Bawa-Garba_case" target="_blank" rel="noopener noreferrer">Jack Adcock, a six-year-old boy with Down’s Syndrome who died due to errors made by a registrar called Hadiza Bawa-Garba in 2011</a>. His parents suspect special needs were a factor in the neglect leading to his death. But when the doctor was struck off, there was an outcry among fellow medics leading to a long-running, crowdfunded legal case backing her – not anger over a small boy who should still be alive.</p>
<p>When the first LeDeR report was released last year, the health secretary did not even bother with a statement in parliament. Then the second review was ‘buried’ in the same week as two other reports into the autism scandal before <a href="https://www.autism.org.uk/get-involved/media-centre/news/2019-05-23-panorama-documentary-abuse-scandal.aspx" target="_blank" rel="noopener noreferrer">a devastating BBC Panorama expose of abuse</a>. This reduced embarrassment for the NHS and ensured Matt Hancock could clear the decks of discomforts before the launch of his Tory leadership bid. &#8220;It is worse than doing nothing,&#8221; said Ryan. &#8220;People are dying in total breach of human rights, but these people just give a pretence of doing something.&#8221;</p>
<p>She is right. This work by Bristol University to review more than 4,300 deaths over the past three years should be taken out of NHS hands and placed under an independent body that will not bend easily to political winds.</p>
<div class="ref-ar"><a href="https://unherd.com/2018/12/our-shameful-social-care-crisis/?edition=us&#038;ref=refinnar" class="text-decoration-none border-0"><a href="https://unherd.com/2018/12/our-shameful-social-care-crisis/?edition=us&#038;ref=refinnar" class="text-decoration-none border-0"><img decoding="async" src="https://unherd.com/wp-content/uploads/2018/12/GettyImages-536316165.jpg?w=300" /></a><div class="content"><a href="https://unherd.com/2018/12/our-shameful-social-care-crisis/?edition=us&#038;ref=refinnar" class="text-decoration-none border-0"><span class="meta">Further reading</span></a><a href="https://unherd.com/2018/12/our-shameful-social-care-crisis/?edition=us&#038;ref=refinnar" class="text-decoration-none border-0"><h5>Our shameful social care crisis</h5></a><p class="author"><a href="https://unherd.com/2018/12/our-shameful-social-care-crisis/?edition=us&#038;ref=refinnar" class="text-decoration-none border-0"><span>By</span> James Bloodworth</a></p></div></a></div>
<p>It is, of course, far easier for politicians to praise the NHS or pose as its protector from foreign invasion than to fight for the rights of vulnerable people falling victim to its failures.</p>
<p>From Westminster to our hospitals, we see clearly the gross inequality that confronts Britain’s most excluded minority and stains our society. What other group could be confined in secure psychiatric units and forcibly drugged with fewer rights than child killers amid minimal public concern? This systemic disregard is made worse as some bear the brunt of local authority spending cuts that slash support and entrench their isolation.</p>
<p>Now we know that people are dying from indifference in a health system supposed to offer sanctuary. And the ultimate tragedy is how few people really seem to care.</p>
<p>To read the rest of the <em>Riven Britain</em> series, click <a href="https://unherd.com/series/unherd-inequalities/" target="_blank" rel="noopener noreferrer">here</a>.</p>
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